Updating 2nd October
When I was informed that I had Morgellons I continued my search to find a logical cause for my skin lesions and multiple symptoms with as much strength and determination that I could muster. Finally, after 20 years, just as I was about to give up my G.P. referred me to a team of Dermatologists acclaimed to be one of the best in the country based at Salford Royal Hospital. Dr McMullen immediately recognised my lesions and arranged the appropriate blood test. Pemphigoid antibodies were found confirming her diagnoses, of ‘Pre-Bullous Pemphigoid Ulcerations’. B.P. is extremely rare and mainly only affects the elderly so it is of no surprise that many doctors did not recognise these lesions, especially as they have not reached the blister stage. I have suffered from these skin lesions all over my face, back etc. Unfortunately, due to my 'multiple drug sensitivities' and Diabetes, modern medicine has nothing that can help me. Knowing the cause of my skin lesions I am now able to help myself to a degree.
I have suffered from Hives since childhood and Psoriasis but it takes a trained eye to differentiate these conditions from B.P. I have also found documentation stating that there is an association with Pemphigoid and Graves disease. Graves disease is common in our family. Pregnancy increases the likely hood of a child being born with thyroid abnormalities such as Cushings disease etc. in a mother with untreated Graves Disease. Studies show that pregnancy exacerbates Graves Disease. I am the sixth child therefore the chances of my thyroid disorders affecting me more than my siblings are inevitable, although my siblings have died prematurely and suffered greatly.
I also have a multinodular thyroid. Recent ultrasound has found that solid nodules with MICROcalcifications. These findings are features of malignancy. Other severe health issues have been found that I believe are connected but I will go into these in more detail in due course.
I also have Diabetes. According to the Professor of Endocrinology treating me, Cushings causes Diabetes. Cushings also causes the frequent and unusual infections that I suffer from. My blood and urinary tests show high Cortisol levels on most occasions. Raised Cortisol is also caused by Cushings.
Cushings could also explain my sudden excruciating bone pain and occasional raised calcium found on blood tests as Cushings causes calcium to leak from the bones. Cyclical Cushings can take months or even years to diagnose.
Cushings causes unusual hair growth. This could explain the course dark hairs that I notice after a severe bout of illness.
An added twist is that my urine changes colour when my blood sugar is low (see the pictures below). I am under investigation for Porphyria and Alkaptonuria. These conditions cause this phenomena. If Porphyria is the cause of my urinary changes, this would explain when my blood sugar is high my urine is clear and remains clear. Porphyria would also explain the reactions that I have had when taking the medications that are on the unsafe list for Porphyria.
Below are conditions etc. that I have been found/diagnosed with or under investigation for: -
Carcinoid Tumours also known as 'cancers in slow motion' release hormones into the body that can cause multi system disease
Carcinoid Syndrome. They grow so slowly that it can take many years before the tumour is diagnosed. Anaesthetics are known to trigger the release of these hormones. My health deteriorated dramatically after a series of Lignocaine/Lidocaine dental injections. More information coming soon.
Pre Bullous-Pemphigoid ulcerations have been misdiagnosed for decades by the many doctors that I have seen. Eventually a Dermatologist instantly recognised my skin lesions. Pemphigoid antibodies in my blood confirmed this condition.
Chronic Sepsis including Hospital Acquired Infections
Tuberculosis According to doctors the lesions in my lungs found on scans are the result of Tuberculosis that I am unaware I have had.
G6PD Deficiency Investigations into this condition were 'cancelled before completion'.
B12 and or Folate Deficiency These results are also abnormal on occasions
My red and white blood cells results are always found to be abnormal
What are these fibres?
Over the years I have asked Dermatogists to test for Keratin and Collagen but they refused! I believe that I have found the answer to what these fibres are. I am awaiting test results that could provide a logical explanation for this phenonema.
Characterization and evolution of dermal filaments from patients with Morgellons disease.
International Lyme and Associated Diseases Society, Bethesda, MD, USA;
Morgellons disease is an emerging skin disease characterized by formation of dermal filaments associated with multisystemic symptoms and tick-borne illness. Some clinicians hypothesize that these often colorful dermal filaments are textile fibers, either self-implanted by patients or accidentally adhering to lesions, and conclude that patients with this disease have delusions of infestation. We present histological observations and electron microscopic imaging from representative Morgellons disease samples revealing that dermal filaments in these cases are keratin and collagen in composition and result from proliferation and activation of keratinocytes and fibroblasts in the epidermis. Spirochetes were detected in the dermatological specimens from our study patients, providing evidence that Morgellons disease is associated with an infectious process.
I have been informed that fibers found on a Morgellons patient were tested and found to be a nylon polymer. Drug polymers (ampicillin) have been found to increase the frequency of allergic reactions. I believe there is a connection between cytotoxic drugs, cytotoxic rubber latex rubber (including medical gloves), fibers found on patients and hypersensitivity. Bullous Pemphigoid is a type II hypersensitivity (or cytotoxic hypersensitivity) reaction.
A Dermatologist found Pemphigoid antibodies in my blood test results. I have been diagnosed with Pre-Pemphigoid Ulcerations...Vaccinations, pharmaceutical drugs including penicillin can trigger Pemphigoid in susceptible people. Pemphigoid can appear as Hives, psoriasis or these ulcerations. I have suffered from Hives since childhood. Eventually the condition will show blisters. I believe that vaccinations, penicillin’s etc. have caused major problems to our health
What is ‘it’ that a doctor at Tameside General Hospital is not a part of?
On 30th of May 2012, the consultant at the hospital diagnosed ‘TEMPORAL ARTERITIS’. He arranged an urgent biopsy and blood tests but after reading my medical notes the doctor changed his mind claiming that he is “obviously not a part of it”.
What are the plugs in these skin lesions?
My Dermatologist has explained that they are exposed hair follicles that form new hair growth. Do not pluck them out! Ulcerations have extended to deeper layers of the skin exposing the hair follicles.
Bullous pemphigoid occurs when the immune system attacks deeper layers of the skin!
Since at least 1938 patients have been diagnosed with ‘Delusions of Parasitosis’. I have reason to believe that many patients have been admitted into Mental Health Units for misdiagnosed physical ailments. Can you imagine the implications including the amount of compensation when the truth is exposed?
To all Dermatologists that diagnose Morgellons sufferers as being mentally ill with 'Delusions of Parasitosis'. Have you ruled out rare conditions known to cause these patients symptoms? What degree in psychiatry do you hold to make such a diagnosis?...
The CDC and many of my doctors including Dermatologists over the years have only performed frontline tests. Why?
An Immunologist has also found that I have low antibodies to common organisms. Low IgG and other abnormal blood test results including an abnormal IgM but no treatment or further tested have been provided.
This website and my book 'MORGELLONS the TRUTH' are a compilation of over twenty years research and documentation, my struggle for health care and what I have found to help the severity of my condition.
MORGELLONS the TRUTH! by Shirley Collinge-Smits
It was late in the evening in August 1992. My body was on fire and my head felt like it was going to explode. The doctor watched solemnly as I plucked a clump of fine hairs from a sore on my leg. He looked closely at this tiny array of multicoloured hairs turning and twisting. I placed them under my primitive microscope and zoomed in. With an inquisitive look on his face he peered into the microscope and almost collapsed in front of my eyes. Without a word he turned and fled out of my house. Now if that scared him, can you imagine what it did to me? Two days later there was something even more sinister under that microscope that put the fear of God into me...
These days we have microscopes that take pictures and videos. We have the Internet so others can see what we see. We also have Morgellons and there are thousands of sufferers all over the world with the same symptoms, the same sores and strange looking unidentified particles and fibres that I have suffered from for twenty years. We also have the same problems with the medical profession. A doctor stated that I was ‘mad... a raving lunatic’. I have received an 'unreserved apology' from the N.H.S. Trust involved as I was genuinely physically ill with undiagnosed Ehlers-Danlos a 'rare' genetic mutation of collagen, Bullous Pemphigoid, Diabetes, other immune disorders, severe bowel problems etc.
The C.D.C. findings on Morgellons published on 25th January 2012 states that ‘Solar elastosis was the most common histopathologic abnormality, present in 19 (51%) biopsied lesions… solar elastosis, a degeneration of dermal connective tissue and increased amounts of elastic tissue due to prolonged sun exposure'. ELASTOSIS IS A FEATURE OF EHLERS-DANLOS. Read more...A simple test on the plugs in my sores should confirm if they are collagen/keratin. Dr Gilmour a Dermatologist at Tameside General Hospital, Lancashire U.K. did not arrange tests and discharged me still suffering with at least one sore thought to be carcinoma by another Dermatologist and a genetic condition founded and named after two Dermatologists.
A barrister has informed me that my claim for medical negligence is worth over a million pounds. It's too late for me, there is too much money involved. I am in no doubt that I shall have to suffer for the rest of my life, I have nothing to lose. This is why I refuse to hide my identity, say publicly what I can prove to be the truth. I will expose each and every individual involved in cover-ups and lies.
Have experiments got out of control?
Dr. Patrick Steptoe, the pioneer of in vitro fertilization, was my gynaecologist in 1972. The first letter from my G.P. to Gyneacology at Royal Oldham Hospital, says that I am of a low intelligence. My G.P. obviously did not know me but why should intelligence be relevant to a gynaecologist? Rabbits and pregnant mares were used in these experiments for I.V.F.
Coming soon 'MORGELLONS the TRUTH' book by Shirley Collinge-Smits
DEMAND THE TRUTH! There is strength in unity.
Please contact me